Purple power: epilepsy education and awareness
March 26th is Purple Day for Epilepsy, a global initiative dedicated to raising awareness about epilepsy and supporting those affected by this neurological condition. Epilepsy is characterised by recurrent, unprovoked seizures resulting from sudden bursts of electrical activity in the brain, leading to temporary disruptions in normal brain function.
UNDERSTANDING EPILEPSY
Around 250,000 Australians are currently diagnosed with epilepsy, and approximately 3.5% of the Australian population will experience this neurological disorder at some point in their lifetime. On a global scale, more than 65 million people worldwide have epilepsy, making it the world’s most common serious brain disorder. However, despite these statistics, epilepsy remains shrouded in mystery and misconceptions for much of the community.
Epilepsy varies in severity and frequency from person to person and seizures differ as well, from a momentary pause and staring into space to full body convulsions. In fact, there are about 40 different types of epilepsy which can either involve the whole brain or part of the brain. The frequency of seizures also differs among individuals, with some experiencing multiple seizures daily, while others may have them only occasionally.
CAUSES AND TRIGGERS
The exact cause of epilepsy remains unknown in about half of all cases. However, potential factors contributing to the development of epilepsy include:
• Genetic predisposition: A family history of epilepsy can increase the likelihood of developing the condition.
• Brain injuries: Trauma from accidents, strokes, or infections can lead to epilepsy.
• Developmental disorders: Conditions such as autism and neurofibromatosis are associated with a higher incidence of epilepsy.
Common triggers that may provoke seizures in individuals with epilepsy include stress, lack of sleep, some rapid flashing lights or geometrical pattern changes, physical or emotional stress, and alcohol consumption.
DIAGNOSIS AND TREATMENT
Diagnosing epilepsy typically involves a comprehensive medical evaluation, including a detailed account of seizure history, neurological examinations, and diagnostic tests such as electroencephalograms (EEGs) and imaging studies.
While there is no cure for epilepsy, various treatment options can help manage seizures effectively:
- Medications: Anti-epileptic drugs (AEDs) are the most common treatment and can control seizures in about 70% of cases.
- Surgery: For individuals whose seizures originate from a specific area of the brain, surgical intervention may be considered.
- Lifestyle modifications: Adequate sleep, stress management, and avoiding known seizure triggers can aid in seizure control.
- Dietary therapies: Specialised diets, such as the ketogenic diet, have been effective in reducing seizures for some individuals.
LIVING WITH EPILEPSY
Coming to terms with the diagnosis of epilepsy may be difficult, require a period of adjustment and some lifestyle changes. Seizures can be disruptive and impact your life, but many people with epilepsy gain seizure control with regular medications and a sensible lifestyle. Two in three people become seizure free.
Epilepsy does not need to limit your expectations or achievements.
Public education and awareness initiatives like Purple Day play a crucial role in dispelling myths around epilepsy.
Organisations like Epilepsy Action Australia work to bring the condition out of the shadows and increase awareness of the impact that this condition can have on individuals and families. Plus, knowledge is power when it comes to understanding and assisting someone with epilepsy. There’s no reason to be afraid if you see someone having a seizure; you can help, with just a little knowledge about the condition.
SEIZURE FIRST AID: KEY STEPS
- Stay with the person
- Keep them safe, removing anything that could hurt them
- Don’t try to restrain them
- Don’t put anything in their mouth
- Roll them onto their side once jerking/shaking subsides
- Reassure them until they have recovered
- Call an ambulance if the seizure lasts longer than five minutes
Purple Day, is all about raising awareness for epilepsy and showing support for the 1 in 25 Australians living with the condition. In Australia, the Make March Purple campaign runs all month long, giving families, schools, and communities plenty of ways to get involved. This year’s theme, Purple Heroes, celebrates the amazing strength of people with epilepsy, as well as their families, carers, and supporters.
Getting involved is easy!
You can wear purple, host a morning tea, take on a fun “Purple Challenge,” or set up a fundraising page to support epilepsy services, education, and research. Schools and workplaces can also join in by decorating in purple or running awareness activities. And if you’re short on time? Even a quick social media post using #MakeMarchPurple helps spread the word. Find out more and access resources at makemarchpurple.org.au/event/epilepsy-action-australia
For more information and resources, visit Epilepsy Action Australia epilepsy.org.au
